Monday, October 10, 2011

update after pain appt

I met with the nurse practicioner. she was pretty nice. She texted my doctor who was in a meeting to confirm her plan. Her plan is to slowly incresae (as to avoid major fatigue side effect) my neurontin. i may get the 2-3 day inpatient epidural after winter break, but I have to call at the end of November to schedule for December. I actually can get another nerve block if neeeded over thanksgiving break. Hopefully the increased medicine will help me more. Soon i'm taking a bus to NYC and then the LIRR train. At the train station near my school, i'm getting a ride back to school from 2 friends because the bus times are inconvient and with my pain i cannot stand for at least 30 minues to wait for the bus. When im back at school i will unpack and relax for a bit before starting some homework.

Sunday, October 9, 2011

RSD/CRPS update

last monday i had the worst pain flare ever. I was put on neruontin. It helped a bit for a few days. Today I'm also in awful pain. I was supposed to see my pain doctor tommorow at 8, but he has a meeting at that time until almost 1030. Problem is i have a bus back to school booked at 1120. i will therefore, see a nurse practiconer. im going to ask about getting the 2-3 day inpatient epidural over winter break. I just hope i can hold up until then. Somehow, im doing well in school academically, but its realy hard to maintain, as is my social life. im so tired right now but the pain is just too strong to sleep. i really hope the monster of RSD/CRPS is tamed soon for all those who suffer like me and those that suffer worse.