Monday, March 18, 2013
update on today's procedure (lumbar epidural steroid injection)
Posted by Purpleviolin91 at 7:25 PM 0 comments
Thursday, March 7, 2013
i got to educate someone about RSD yesterday!
I arrived to my class
early because i wanted to turn in the paper copy of my hw and leave
cause i was having a flare. I arrived almost an hour early cause i
didn't realize how early i was. and there was a professor in the
classroom and i asked if i could enter, and she said sure she was just
packing up her things from teaching a class
and she noticed my cane
and asked about it in a polite way. and i said i have chronic pain, rsd and i told her a bit about it,
and
she said wow, i have a cold/minor flu right now and thats bugging me,
and i know thats nothing to what you experience and i can't imagine
worse than that everyday. This was great cause i know ppl will sometimes
be like oh ive had the flu i know what you experience. She realized
that even her minor and temporary illness wasn't as bad as what we
experience.
and she says i hope you get a miracle someday
and as she left she said ill hope for a miracle for you and dont give up!
Posted by Purpleviolin91 at 3:57 PM 0 comments
Sunday, March 3, 2013
a miracle of miracles (can i ask for one more?)
I went out to dinner with some Priscilla Fans/Posse members last night in Philly. They had traveled to see the show yesterday afternoon, and since i live so close, i met them for dinner. It was really fun! And my RSD actually behaved. I was reflecting on the train back (a 20 minute train ride) about how my pain level was at about a 2 out of ten and by that point it was past 7 PM and i hadn't taken my night time meds yet that i usually take at 5 pm! My pain went up to a 5 later that night, but i didn't have to take my perocet. Today i'm going to see Priscilla myself, for the 6th time (1st time in philly/on tour). I'm going with my aunt and uncle. My pain is at about a 4 or 5 right now, and im hoping it won't rise, at least not till im home again. This show is my obsession. It has saved me from suicide as corny as that sounds (one night i was really down, so i watched videos about the show online and i listened to the soundtrack several times and that helped me).
Posted by Purpleviolin91 at 10:55 AM 0 comments