A look back

Last New Years Eve I had a massive pain flare. So bad that i called the emergency line, which at my pain doctor's means having to call the ER and ask for the anesthesiologist on call, which may just be a surgical anesthesiologist with very little training on pain management. By some miracle the one on duty got ahold of my doctor and had him call me back. Yes, on New Years Eve. It was one of the sweetest things a doctor has ever done for me. He couldn't do much, but tell me to take an extra pill and rest and hang in there. But the fact that he took time to call me on a holiday, meant a lot to me.

2012 was an interesting year. I thought my pain would improve, but it's worsened. I tried many treatments in 2012 including calmare which i thought held great promise, because at one point during treatment i was down to 2/10 pain level. However, i then started to withdrawl from cymbalta and topomax which is no joke. It is so painful. Then i had the hope that I would get inpatient ketamine, but my insurance keeps to this day denying it. I had outpatient ketamine a few times, the most successful was a series of 4 days at the end of August/beginning of September that gave me a month of decent relief with my average pain level being about a 5/10. Then that faded. I thought i would have to drop out of school, but i made it. Instead i'm transferring to Rutgers Camden in 2013. I will be going part time.

2012 did have some great memories. My favorite was going to see Priscilla for the fifth time and attending the fan/cast party i was invited to. It was so much fun. I also had a blast watching the Tonys even though i was in a horrific pain flare, i would not go to the ER until I saw Audra Mcdonald win and give her speech. I'm glad i did hold out, because her speech was amazing. Then i got to see Audra perform in Porgy and Bess!! I also got to go to Ghost the musical closing night!

I've met online many with RSD this year. They are my support system. It is great to have people that know exactly what i'm going through. I also am grateful for those that read this blog and those that don't but still support me weather they have RSD or not.

Here's to hoping 2013 will be better!